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Doctor looks into a patient's ears during a physical exam.General DS InformationHealth and Research - Physical HealthmyDSC Webinar Series-Dermatology and Down Syndrome
November 22, 2024

myDSC Webinar Series-Dermatology and Down Syndrome

Join Dr. Jillian Rork, Clinical Assistant Professor of Dermatology and Pediatrics at Dartmouth Health and Dr. Allison Kranyak, Psoriasis and Phototherapy Fellow in the Department of Dermatology at the University…
Shannon Bergstressser
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Doctor looks into a patient's ears during a physical exam.Health and Research - Physical HealthHealth and ResearchWomen’s Health and Down Syndrome
October 3, 2024

Women’s Health and Down Syndrome

ACKNOWLEDGEMENTS LEAD AUTHOR, HANNAH GRAHAM, MD Dr. Graham is a board-certified Family Medicine physician at the Advocate Health Care Adult Down Syndrome Center in Park Ridge, IL. The Center serves…
Christina Reaves
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Doctor looks into a patient's ears during a physical exam.Health and Research - Physical HealthHealth and ResearchDown Syndrome and Hidradenitis Suppurativa (HS)
October 3, 2024

Down Syndrome and Hidradenitis Suppurativa (HS)

Down syndrome and Hidradenitis suppurativa (HS) Hidradenitis suppurativa (HI-drad-en-I-tis sup-per-ah-TEE-vah or HS) is a chronic condition with recurrent painful bumps and draining sores of the skin. Sometimes it can look…
Christina Reaves
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Doctor looks into a patient's ears during a physical exam.Health and Research - Physical HealthHealth and ResearchDown Syndrome and Folliculitis
October 2, 2024

Down Syndrome and Folliculitis

Down Syndrome and Folliculitis What is Folliculitis? Folliculitis is a skin issue that happens when a hair follicle gets inflamed. Folliculitis is one of the most common skin conditions in…
Christina Reaves
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Doctor looks into a patient's ears during a physical exam.Health and Research - Physical HealthHealth and ResearchDown Syndrome and Rashes Around the Mouth
October 2, 2024

Down Syndrome and Rashes Around the Mouth

Down Syndrome and Rashes Around the Mouth There are several types of rashes around the mouth that are common in children with Down syndrome. What types of rashes are seen…
Christina Reaves
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Doctor looks into a patient's ears during a physical exam.Health and ResearchHealth and Research - Physical HealthDown Syndrome and Syringomas
October 2, 2024

Down Syndrome and Syringomas

Down Syndrome and Syringomas Syringomas (seer-in-go-mas) are small, skin-colored bumps that can happen on the face in people with Down syndrome.  What causes syringomas? Syringomas are small, benign (noncancerous) growths…
Christina Reaves
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Doctor looks into a patient's ears during a physical exam.Health and Research - Physical HealthHealth and ResearchDown Syndrome and Dry Skin
October 2, 2024

Down Syndrome and Dry Skin

Down Syndrome and Dry Skin Dry skin, or xerosis (zee-roh-sis), is one of the most common skin conditions in people with Down syndrome. Dry skin can occur from infancy through…
Christina Reaves
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BehaviorGeneral DS InformationHealth and Research – BehaviormyDSC Webinar Series-Is it Sensory or Is it Behavior
September 17, 2024

myDSC Webinar Series-Is it Sensory or Is it Behavior

Dr. Katie Frank and Abby Rowley present, "Is it Sensory or is it Behavior?" In this presentation, Katie and Abby will discuss causes for behavior change and how to determine…
Kate O’Neill
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Resources for ProfessionalsResources for ProfessionalsIs Down syndrome a risk factor or contraindication for dental implants? A systematic review
July 8, 2024

Is Down syndrome a risk factor or contraindication for dental implants? A systematic review

The purpose of this systematic review was to determine the effectiveness of dental implants placed in patients with Down syndrome and whether the condition is a risk factor or contraindication…
Christina Reaves
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General DS InfoGeneral DS InformationHealthy LivingDentistry and Down Syndrome
July 8, 2024

Dentistry and Down Syndrome

Dental care is important for everybody, but people with Down syndrome can have a number of differences that can require special attention. Source: NDSS and author Dr. Jessica Debord, DDS
Christina Reaves
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General DS InfoResources for ProfessionalsGeneral DS InformationHealth and Research – OtherHeat Tolerance: Temperature Regulation in People with Down Syndrome
July 8, 2024

Heat Tolerance: Temperature Regulation in People with Down Syndrome

Key Points  How the body manages (regulates) body temperature is different in people with Down syndrome compared to people without Down syndrome. The difference in body temperature regulation in people…
Christina Reaves
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Health and Research – OtherEducation/TherapyGeneral DS InformationHealth and Research - Physical HealthGetting an IV Visual
July 8, 2024

Getting an IV Visual

This Getting an IV Visual explains what happens when we have to get an intravenous line (IV). This visual can help individuals with Down syndrome know what to expect during…
Christina Reaves
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Health and Research – OtherEducation/TherapyGeneral DS InformationHealth and Research – OtherGetting My Blood Drawn Visual
July 8, 2024

Getting My Blood Drawn Visual

This Getting My Blood Drawn visual explains what happens when we have a blood test done.Source: Katie Frank, PhD, OTR/L - Occupational Therapist, Adult Down Syndrome Center
Christina Reaves
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General DS InfoGeneral DS InformationIndependencemyDSC Webinar Series-Fiduciary Responsibilities of Conservators and Guardians
May 15, 2024

myDSC Webinar Series-Fiduciary Responsibilities of Conservators and Guardians

Join Amy Willoughby Bryant, the Director of Nashville's Office of Conservatorship Management, for an informative and essential webinar on the fiduciary responsibilities of conservators and guardians. In this session, Amy…
Christina Reaves
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BehaviorHealth and Research – BehaviormyDSC Webinar Series – Time of Transition: Strategies for Making Transitions Successful
April 11, 2024

myDSC Webinar Series – Time of Transition: Strategies for Making Transitions Successful

Transitions can be as big as transitioning out of high school or as small as transitioning to a new pair of shoes; but either way they can be a challenge…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsIs Down syndrome a risk factor or contraindication for dental implants? A systematic review
April 8, 2024

Is Down syndrome a risk factor or contraindication for dental implants? A systematic review

The purpose of this systematic review was to determine the effectiveness of dental implants placed in patients with Down syndrome and whether the condition is a risk factor or contraindication…
Kim Warren
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Health and Research – OtherHealth and Research – OtherDentistry & Down Syndrome
April 8, 2024

Dentistry & Down Syndrome

Dental care is important for everybody, but people with Down syndrome can have a number of differences that can require special attention.Source: National Down Syndrome Society
Kim Warren
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EducationTherapyGeneral DS InformationEducation/TherapyMovement Is Key to Supporting Adults with Down Syndrome
April 8, 2024

Movement Is Key to Supporting Adults with Down Syndrome

Over the past few decades, research and greater awareness has helped adults with Down syndrome — and a well-trained support system — to be more physically active in their daily…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsIntegration of ATAC-seq and RNA-seq identifies MX1-mediated AP-1 transcriptional regulation as a therapeutic target for Down syndrome
April 4, 2024

Integration of ATAC-seq and RNA-seq identifies MX1-mediated AP-1 transcriptional regulation as a therapeutic target for Down syndrome

Growing evidence has suggested that Type I Interferon (I-IFN) plays a potential role in the pathogenesis of Down Syndrome (DS).Source: Guo et al.
Kim Warren
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EducationTherapyEducation/TherapyResources for ProfessionalsHow Co-Teaching May Contribute to Inclusion in Mathematics Education: A Systematic Literature Review
April 4, 2024

How Co-Teaching May Contribute to Inclusion in Mathematics Education: A Systematic Literature Review

This systematic literature review focuses on co-teaching and inclusion in mathematics education. Co-teaching, in which two or more teachers share responsibility for students’ mathematical learning, can cater to students in…
Kim Warren
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EducationTherapyEducation/TherapyResources for ProfessionalsResearch and Reality: A Survey of Educators’ Perceptions about Evidence-Based Practices in Inclusive Settings for Students with Intellectual Disabilities
April 4, 2024

Research and Reality: A Survey of Educators’ Perceptions about Evidence-Based Practices in Inclusive Settings for Students with Intellectual Disabilities

This survey study examined both why and how to best educate students with ID in the American inclusive classroom.Source: Casale-Giannola et al.
Kim Warren
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EducationTherapyEducation/TherapyTeaching Strategies for Students With Special Needs
April 3, 2024

Teaching Strategies for Students With Special Needs

Special education ensures students with learning disabilities receive specialized instruction designed to meet their unique learning needs. That way, they too get an opportunity to reach their full academic potential.Source:…
Kim Warren
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EducationTherapyEducation/TherapyIntensive Intervention Practice Guide: Teaching Self-Regulation Skills to Students With Disabilities (K-12)
April 1, 2024

Intensive Intervention Practice Guide: Teaching Self-Regulation Skills to Students With Disabilities (K-12)

Teaching self-regulation skills is beneficial for students of all ages and abilities but is especially impactful for students who have been exposed to trauma and are more likely to lack…
Kim Warren
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EducationTherapyEducation/TherapyAchieving Inclusion: Strategies for Creating Inclusive Classrooms for ALL Students
April 1, 2024

Achieving Inclusion: Strategies for Creating Inclusive Classrooms for ALL Students

Inclusion/ inclusive education is much more than special education services and supports and much more than simply educating students with and without disabilities together.Source: Julie Causton, PhD, Kate MacLeod, PhD,…
Kim Warren
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Health and Research – OtherHealth and Research – OtherIron Deficiency and Down Syndrome
April 1, 2024

Iron Deficiency and Down Syndrome

Iron deficiency is a condition in which the body does not have enough iron. Iron deficiency can cause anemia (low red blood cell count). This is called iron deficiency anemia.…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsDental care for patients with Down syndrome: Understanding the challenges and accommodations
April 1, 2024

Dental care for patients with Down syndrome: Understanding the challenges and accommodations

Learning about your patients with Down syndrome will enable you to provide them with more personal care. You'll make them more comfortable, which will lead to better dental care. Lisa…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsA Comprehensive Review of the Relationship Between Oral Health and Down Syndrome
March 29, 2024

A Comprehensive Review of the Relationship Between Oral Health and Down Syndrome

Individuals with Down syndrome (DS) may be more susceptible to oral disorders as a result of a combination of genetic factors, immunological disturbances, anatomical anomalies, and probable difficulties in maintaining…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsOrofacial findings and orthodontic treatment conditions in patients with Down syndrome – a retrospective investigation
March 29, 2024

Orofacial findings and orthodontic treatment conditions in patients with Down syndrome – a retrospective investigation

The most common chromosomal anomaly is Down syndrome/Trisomy 21, which can be associated with varying degrees of intellectual disability and physical malformation. Specific orofacial characteristics regarding orthodontic treatment options and…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsPeriodontal disease in down syndrome: Predisposing factors and potential non-surgical therapeutic approaches
March 29, 2024

Periodontal disease in down syndrome: Predisposing factors and potential non-surgical therapeutic approaches

Periodontal diseases (PDs) have been documented to be significantly more prevalent and severe in patients with Down syndrome (DS). Different immunological and microbiological factors contributed to predisposing these patients to…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsPediatric Psoriasis with or without Arthritis: Does It Make a Difference?
March 29, 2024

Pediatric Psoriasis with or without Arthritis: Does It Make a Difference?

Psoriasis and psoriatic arthritis can present simultaneously or separately in children and may pose a diagnostic challenge. The objective of this study was to compare the dermatological manifestations in pediatric…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsCo-occurring Conditions in Children with Down Syndrome and Autism: A Retrospective Study
March 28, 2024

Co-occurring Conditions in Children with Down Syndrome and Autism: A Retrospective Study

Down syndrome (DS) is one of the most common genetic causes of intellectual disability, and it is associated with an increased incidence of numerous co-occurring conditions. Autism spectrum disorder (ASD)…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsDiagnosis and treatment of late-onset myoclonic epilepsy in Down syndrome (LOMEDS): A systematic review with individual patients’ data analysis
March 28, 2024

Diagnosis and treatment of late-onset myoclonic epilepsy in Down syndrome (LOMEDS): A systematic review with individual patients’ data analysis

The late onset myoclonic epilepsy in Down Syndrome (LOMEDS) is a peculiar epilepsy type characterized by cortical myoclonus and generalized tonic-clonic seizures (GTCS), in people suffering from cognitive decline in…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsIs There an Adequate Therapeutic Approach to Thyroid Pathology in Patients with Down Syndrome?
March 28, 2024

Is There an Adequate Therapeutic Approach to Thyroid Pathology in Patients with Down Syndrome?

Thyroid dysfunction stands as the most prevalent endocrine disorder in individuals with Down syndrome, particularly showcasing both clinical and subclinical hypothyroidism. The objective of this study was to analyze the…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsEmotional and Behavioral Features Associated with Subclinical Hypothyroidism in Children and Adolescents with Down Syndrome
March 28, 2024

Emotional and Behavioral Features Associated with Subclinical Hypothyroidism in Children and Adolescents with Down Syndrome

Subclinical hypothyroidism (SH) is particularly frequent in individuals with Down syndrome (DS). Despite the amount of evidence suggesting SH is associated with psychopathological symptoms and sleep problems in general population,…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsMicronutrient status in children and adolescents with Down syndrome: systematic review and meta-analysis
March 28, 2024

Micronutrient status in children and adolescents with Down syndrome: systematic review and meta-analysis

Down syndrome (DS) is the most common genetic disorder. To date, the scientific literature regarding micronutrient status in children and adolescents with DS has not been systematically reviewed. Therefore, the…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsRecurrent Respiratory Infections in Children with Down Syndrome: A Review
March 28, 2024

Recurrent Respiratory Infections in Children with Down Syndrome: A Review

Down Syndrome (DS) is the most common chromosomal abnormality compatible with life. The life of patients with DS can be strongly impacted by Recurrent Respiratory tract Infections (RRIs), leading to…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsImproving B-ALL Outcomes in Children With Down Syndrome
March 28, 2024

Improving B-ALL Outcomes in Children With Down Syndrome

LEUKEMIA Improving B-ALL Outcomes in Children With Down Syndrome Tori Rodriguez, MA, LPC, AHC|January 5, 2024 Child patient with Down syndrome. Several studies sought to elucidate outcomes as well as…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsHypovitaminosis D in persons with Down syndrome and autism spectrum disorder
March 27, 2024

Hypovitaminosis D in persons with Down syndrome and autism spectrum disorder

Plasma levels of vitamin D have been reported to be low in persons with Down syndrome (DS) and existing data is limited to small and homogenous cohorts. This is of…
Kim Warren
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General DS InfoGeneral DS InformationRecursos en españolAyuda para los representantes de beneficiarios y fiduciarios del VA
March 27, 2024

Ayuda para los representantes de beneficiarios y fiduciarios del VA

Esta guía es para quienes han sido designados por una agencia gubernamental para administrar los beneficios de ingresos de otra persona, como los cheques de beneficios del Seguro Social o…
Kim Warren
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General DS InfoGeneral DS InformationHelp for representative payees and VA fiduciaries
March 26, 2024

Help for representative payees and VA fiduciaries

This guide is for those who have been appointed by a government agency to manage another person's income benefits, such as Social Security or Veterans Affairs benefit checks.Source: Consumer Financial…
Kim Warren
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General DS InfoGeneral DS InformationRecursos en españolAyuda para fideicomisarios bajo un fideicomiso en vida revocable
March 19, 2024

Ayuda para fideicomisarios bajo un fideicomiso en vida revocable

Esta guía es para aquellos que han sido nombrados fideicomisarios en virtud de fideicomisos en vida revocables.Source: Consumer Financial Protection Bureau
Kim Warren
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General DS InfoGeneral DS InformationHelp for Trustees under a revocable living trust
March 19, 2024

Help for Trustees under a revocable living trust

This guide is for those who have been named as trustees under revocable living trusts.Source: Consumer Financial Protection Bureau
Kim Warren
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General DS InfoGeneral DS InformationRecursos en españolAyuda para los guardianes o tutores de propiedades nombrados por el tribunal
March 19, 2024

Ayuda para los guardianes o tutores de propiedades nombrados por el tribunal

Esta guía está dirigida a quienes han sido designados por un tribunal como guardianes de bienes o tutores, otorgándoles el deber y el poder de tomar decisiones financieras en nombre…
Kim Warren
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General DS InfoGeneral DS InformationHelp for Court-Appointed Guardians of Property and Conservators
March 19, 2024

Help for Court-Appointed Guardians of Property and Conservators

This guide is for those who have been appointed by a court to be guardians of property or conservators, giving them the duty and the power to make financial decisions…
Kim Warren
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General DS InfoGeneral DS InformationRecursos en españolAyuda para agentes bajo un poder legal
March 19, 2024

Ayuda para agentes bajo un poder legal

Esta guía es para aquellos que han sido nombrados en un poder legal decisiones sobre dinero y propiedades en nombre de otra persona.Source: Consumer Financial Protection Bureau
Kim Warren
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General DS InfoGeneral DS InformationHelp for Agents Under a Power of Attorney
March 19, 2024

Help for Agents Under a Power of Attorney

This guide is for those who have been named in a power of attorney to make decisions about money and property for someone else.Source: Consumer Financial Protection Bureau
Kim Warren
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General DS InfoGeneral DS InformationmyDSC Webinar Series – Policy Advocacy
March 14, 2024

myDSC Webinar Series – Policy Advocacy

National Down Syndrome Congress Grassroots Advocacy Manager Jawanda Mast discusses policy advocacy and how you can make a difference through grassroots advocacy. Source: LuMind IDSC Foundation
Kim Warren
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General DS InfoGeneral DS InformationSpecial Needs and Bullying Support Guide
March 14, 2024

Special Needs and Bullying Support Guide

Bullying can happen to any child, but children with special needs are at an increased risk. Some children with disabilities are particularly vulnerable to harassment and may lack the social…
Kim Warren
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Health and Research – OtherHealth and Research – OtherResources for ProfessionalsDown Syndrome ECHO FAQs
March 13, 2024

Down Syndrome ECHO FAQs

This graphic answers several FAQs about the Down Syndrome Medical Interest Group (DSMIG) Project ECHO.Source: DSMIG-USA
Kim Warren
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Health and Research – OtherHealth and Research – OtherIdentifying Substance Abuse Among Clients With Intellectual Disabilities
March 13, 2024

Identifying Substance Abuse Among Clients With Intellectual Disabilities

Identifying Substance Abuse Among Clients With Intellectual Disabilities   By: Elspeth M. Slayter, PhD   So, your field placement involves work with clients who have intellectual and/or developmental disabilities (ID/D,…
Kim Warren
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Health and Research – OtherHealth and Research – OtherDeveloping A Down Syndrome Health Instrument w/Dr. Stephanie Santoro
March 12, 2024

Developing A Down Syndrome Health Instrument w/Dr. Stephanie Santoro

Dr. Stephanie Santoro from Massachusetts General Hospital's Down Syndrome Clinic discusses her research in developing a Down syndrome instrument to enhance healthcare for individuals with Down syndrome on The Lucky…
Kim Warren
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BehaviorHealth and Research – BehaviorBehavior and Down Syndrome: A Practical Guide for Parents
March 12, 2024

Behavior and Down Syndrome: A Practical Guide for Parents

While there are several very good books that address general child behavior, there is not much information available for families specifically designed to support positive behavior for children with Down…
Kim Warren
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EducationTherapyEducation/TherapyDispelling the Myths of Inclusive Education
March 12, 2024

Dispelling the Myths of Inclusive Education

The purpose of this document is to share and dispel several common myths about inclusive education for students with disabilities.Source: TASH
Kim Warren
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EducationTherapyEducation/TherapyResources for ProfessionalsIncluding ALL Students in Schoolwide Positive Behavior Intervention and Supports
March 12, 2024

Including ALL Students in Schoolwide Positive Behavior Intervention and Supports

Schoolwide positive behavior interventions and supports (PBIS) is a multi-tiered system of support (MTSS) framework designed to systematically teach, model, and reinforce appropriate social behaviors (Boden et al., 2018). This…
Kim Warren
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EducationTherapyEducation/TherapyResources for ProfessionalsPlanning for Whole Group Discussions
March 11, 2024

Planning for Whole Group Discussions

Whole group discussions allow the students to ask and answer questions, building on what their peers contribute. Facilitating a whole group discussion requires more than simply asking a question to…
Kim Warren
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EducationTherapyEducation/TherapyResources for ProfessionalsThe Use of Graphic Organizers in Inclusive Classrooms for Students with Significant Cognitive Disabilities
March 11, 2024

The Use of Graphic Organizers in Inclusive Classrooms for Students with Significant Cognitive Disabilities

Classroom teachers have used graphic organizers for years to help students gather, sift through, organize, and share information. Graphic organizers are appealing because they have a wide range use and…
Kim Warren
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EducationTherapyEducation/TherapyResources for ProfessionalsThe Power of Peers: Introduction to the Peer Engagement Implementation Guides
March 11, 2024

The Power of Peers: Introduction to the Peer Engagement Implementation Guides

Relationships with peers are a defining feature of inclusive education. Schools that are committed to inclusion provide numerous forums for students with and without disabilities to learn together in ways…
Kim Warren
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Health and Research – OtherHealth and Research – OtherHealth and Research – Alzheimer's/DementiaResources for Professionals“What to Expect?” Toolkit – Preparing your loved one with Down syndrome for PET and MRI imaging
March 7, 2024

“What to Expect?” Toolkit – Preparing your loved one with Down syndrome for PET and MRI imaging

Having a PET or an MRI scan is a daunting experience for anyone. As brain imaging becomes more commonplace for people with Down syndrome, families may struggle with preparing their…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsNIH designates people with disabilities as a population with health disparities
March 6, 2024

NIH designates people with disabilities as a population with health disparities

Tuesday, September 26, 2023 NIH designates people with disabilities as a population with health disparities   Designation, new research program and update to NIH mission are actions to ensure inclusion…
Kim Warren
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Resources for ProfessionalsResources for ProfessionalsNational Advisory Council on Minority Health and Health Disparities (NACMHD) Working Group on Persons Living with Disabilities
March 6, 2024

National Advisory Council on Minority Health and Health Disparities (NACMHD) Working Group on Persons Living with Disabilities

Health disparities are well documented in the United States and are shaped by the unequal distribution of social, political, and economic resources across demographic subgroups. While disparities in health and…
Kim Warren
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