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September 20, 2023 in Resources for Professionals

Medical Imaging Utilization and Associated Radiation Exposure in Children with Down Syndrome

This study evaluates the frequency of medical imaging or estimated associated radiation exposure in children with Down syndrome.Source: Marlow et al.
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August 31, 2023 in General DS Information, Resources for Black Families

myDSC Webinar Series – Addressing Inequalities for Black Families in the Down Syndrome Community

Crystal Lotterberry, co-founder of the Black Down Syndrome Association, addressed the many inequalities present for Black families in the Down syndrome community. BDSA works to connect, collaborate, educate, and engage…
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August 7, 2023 in Resources for Professionals

Healthcare experiences of patients with Down syndrome from primarily Spanish-speaking households

Abstract We report on the health care experiences of individuals with Down syndrome (DS) from families who are primarily Spanish-speaking. Data were collected through three methods: (1) a nationally distributed,…
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August 3, 2023 in Resources for Professionals, Resources for Black Families

Views on the impact of the COVID-19 pandemic on health in people with Down syndrome from diverse backgrounds

Abstract Down syndrome (DS) has a unique medical and psychological profile. To date, few studies have asked individuals with DS about their views of health, and fewer have explored the…
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July 13, 2023 in Resources for Professionals

LuMind IDSC Statement on FDA Approval of Leqembi

Last week the FDA announced a full approval of a new drug called Leqembi to treat Alzheimer's Disease. The approval is a milestone in helping to address the disease, however,…
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