Alzheimer's Disease

Resources for Professionals

Diagnosis and treatment of late-onset myoclonic epilepsy in Down syndrome (LOMEDS): A systematic review with individual patients’ data analysis

The late onset myoclonic epilepsy in Down Syndrome (LOMEDS) is a peculiar epilepsy type characterized…

Kim WarrenMarch 28, 2024

Health and Research – Other Health and Research – Alzheimer's/Dementia Resources for Professionals

“What to Expect?” Toolkit – Preparing your loved one with Down syndrome for PET and MRI imaging

Having a PET or an MRI scan is a daunting experience for anyone. As brain…

Kim WarrenMarch 7, 2024

Health and Research – Alzheimer's/Dementia Resources for Professionals

Alzheimer’s Disease in People with Down Syndrome: What We Know and What We Can Do About It

In this webinar, Dr. Michael Rafii joins the National Down Syndrome Society (NDSS) to discuss…

Kim WarrenMarch 6, 2024

Resources for Professionals

Multiple morbidity across the lifespan in people with Down syndrome or intellectual disabilities: a population-based cohort study using electronic health records

This study aimed to explore the natural history of morbidities throughout the lifespan of people with…

Kim WarrenFebruary 20, 2024

Health and Research – Alzheimer's/Dementia

Facts About Dementia

Fact sheet about dementia and intellectual disabilities from the NTG.Source: National Task Group on Intellectual…

Kim WarrenFebruary 6, 2024

Resources for Professionals

Modeling the Impact of Research Investment on Down Syndrome–Associated Alzheimer’s Disease

Individuals with Down syndrome (DS) are living longer than they used to. This trend has…

Kim WarrenJanuary 19, 2024

General DS Information

Aging and Down Syndrome, MDSC 2023

In this video, Julie Moran, D.O. and Rachel Grimm discuss issues that come along with…

Kim WarrenDecember 18, 2023

Health and Research – Other Resources for Professionals

New Therapies from Proven Ideas, MDSC 2023

This video discusses the repurposing existing drugs and therapies for new uses. Source: Massachusetts Down…

Kim WarrenDecember 15, 2023

Health and Research – Other

Understanding Research Participation, MDSC 2023

This video discusses why, how, and when families should consider participating in Down syndrome research.…

Kim WarrenDecember 15, 2023

Resources for Professionals Resources for Black Families

Compounded Inequality: Racial Disparity and Down Syndrome

Individuals with Down syndrome are among those most at risk of disparities, and Black individuals…

Kim WarrenOctober 31, 2023

Alzheimer’s Disease

Diagnosis and treatment of late-onset myoclonic epilepsy in Down syndrome (LOMEDS): A systematic review with individual patients’ data analysis

Multiple morbidity across the lifespan in people with Down syndrome or intellectual disabilities: a population-based cohort study using electronic health records

Facts About Dementia

Modeling the Impact of Research Investment on Down Syndrome–Associated Alzheimer’s Disease

Aging and Down Syndrome, MDSC 2023

New Therapies from Proven Ideas, MDSC 2023

Understanding Research Participation, MDSC 2023

Compounded Inequality: Racial Disparity and Down Syndrome

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