What myDSC resources do you use the most? What features have been helpful? Webinars, the resource library, Ask Dr. Chicoine, discount on DSC2U, etc? Please email Michelle at [email protected] to share your thoughts.  We are constantly working on improving myDSC to better empower individuals with Down syndrome and your families with resources that you can use. What would you like to see more of? I’d love to hear your feedback!

Researchers have already learned important information from early analysis of plasma biomarker data from the LIFE-DSR study, and now the Down Syndrome Clinical Trial Network (DS-CTN) and the LuMind IDSC Research Consortium are embarking on a new phase of the study to build on that biomarker data success.

In 2023, LIFE-DSR will add to its activities a special sub-study to meet researchers demand for biomarker data in the Down syndrome population. In the next few months, some LIFE-DSR participants will be invited to provide additional biomarker data that when correlated with long-term clinical data, will prove vitally important to future clinical trials, paving the way for access to therapeutics, interventions, and medications that are safe and meaningful for people with Down syndrome.

Sub-study activities will not be offered at all LIFE-DSR sites, and the sub-study procedures LIFE-DSR participants have to choose from (MRI and PET and/or CSF collection) will only be available to participants who fall in a certain age range and who have a particular interest in and facility for more in-depth testing. LuMind IDSC as well as our industry and network partners are looking forward to launching this next step in the Longitudinal Investigation for the Enhancement of Down Syndrome Research (LIFE-DSR).

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