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Collaboration between palliative care, dementia care, hospice provision, and intellectual disability services is required rather than any one of these systems working in isolation. This is necessary because mainstream ageing and dementia-specific determination tools and scales may have limited value in discovering whether an adult with intellectual disability has advanced dementia and is close to dying.

Source: Kathryn Service, Mary Hogan, Matthew Janicki, Nicole Cadovius, Karen Watchman & Anna Berankova