Duodenal Atresia and Hirschsprung’s Disease Ask Dr. Brian ChicoineHealth and Research – Other Duodenal Atresia and Hirschsprung’s Disease Question: My son was diagnosed with duodenal atresia prior to birth. He had a surgical…Kim WarrenSeptember 26, 2023
Sleep Disturbance in People with Down Syndrome and Alzheimer’s Disease Ask Dr. Brian ChicoineHealth and Research – Alzheimer's/Dementia Sleep Disturbance in People with Down Syndrome and Alzheimer’s Disease Question: My brother is 60 years old with late stage Alzheimer's Disease. He has begun…Kim WarrenSeptember 26, 2023
Medical Imaging Utilization and Associated Radiation Exposure in Children with Down Syndrome Resources for Professionals Medical Imaging Utilization and Associated Radiation Exposure in Children with Down Syndrome This study evaluates the frequency of medical imaging or estimated associated radiation exposure in children…Kim WarrenSeptember 20, 2023
myDSC Webinar Series – Young Adults & Independence: Lessons Learned from Families Independence myDSC Webinar Series – Young Adults & Independence: Lessons Learned from Families Author of "Beyond Down Syndrome", Steve Friedman, his daughter and self-advocate Gwendolyn Friedman, and National…Kim WarrenSeptember 18, 2023
myDSC Webinar Series – Addressing Inequalities for Black Families in the Down Syndrome Community General DS InformationResources for Black Families myDSC Webinar Series – Addressing Inequalities for Black Families in the Down Syndrome Community Crystal Lotterberry, co-founder of the Black Down Syndrome Association, addressed the many inequalities present for…Kim WarrenAugust 31, 2023
Healthcare experiences of patients with Down syndrome from primarily Spanish-speaking households Resources for Professionals Healthcare experiences of patients with Down syndrome from primarily Spanish-speaking households Abstract We report on the health care experiences of individuals with Down syndrome (DS) from…Kim WarrenAugust 7, 2023
Views on the impact of the COVID-19 pandemic on health in people with Down syndrome from diverse backgrounds Resources for ProfessionalsResources for Black Families Views on the impact of the COVID-19 pandemic on health in people with Down syndrome from diverse backgrounds Abstract Down syndrome (DS) has a unique medical and psychological profile. To date, few studies…Kim WarrenAugust 3, 2023
LuMind IDSC Statement on FDA Approval of Leqembi Resources for Professionals LuMind IDSC Statement on FDA Approval of Leqembi Last week the FDA announced a full approval of a new drug called Leqembi to…Kim WarrenJuly 13, 2023
Development of a Physical Therapy-Based Exercise Program for Adults with Down Syndrome Resources for Professionals Development of a Physical Therapy-Based Exercise Program for Adults with Down Syndrome The goal of this research study was to develop a specialized exercise program for individuals…Kim WarrenJune 16, 2023
Weight Management Recommendations for Youth with Down Syndrome: Expert Recommendations Resources for Professionals Weight Management Recommendations for Youth with Down Syndrome: Expert Recommendations A workgroup of clinicians and researchers with extensive experience working with youth with DS came…Kim WarrenJune 15, 2023