Resources for Professionals Weight Management Recommendations for Youth with Down Syndrome: Expert Recommendations A workgroup of clinicians and researchers with extensive experience working with youth with DS came…Kim WarrenJune 15, 2023
Resources for Professionals Financial Impact of a Specialized Down Syndrome Clinic: Implications and Support for Institutional Support of Specialty Care Clinics Individuals with Down syndrome (DS) have specific health care needs and require additional screening and…Kim WarrenJune 15, 2023
Resources for ProfessionalsResources for Black Families Healthcare experiences of patients with Down syndrome who are Black, African American, of African descent, or of mixed race Abstract Scant research has explored the healthcare experiences of people with Down syndrome (DS) in…Kim WarrenJune 15, 2023
Resources for Professionals Adapting Eligibility Criteria for Prescribing FDA Approved Anti-amyloid Immunotherapeutics for Adults with Down Syndrome with Early-Stage Alzheimer’s Dementia An international group of experts convened to determine prescribing criteria equivalences that would be inclusionary…Kim WarrenJune 2, 2023
Global Health Climate Change and the Health of People with Disabilities EPA has developed communication materials that summarize key points from the U.S. Climate and Health Assessment on eight…CapetivateApril 24, 2023
Resources for Professionals Evaluation of Upper Airway Stimulation for Adolescents with Down Syndrome and OSA This study evaluates the safety and effectiveness of upper airway stimulation for adolescent patients with…Rigsby RigsbyJune 3, 2022
Resources for Professionals Impact of the COVID-19 Pandemic on Daily Life, Mood, and Behavior of Adults with Down Syndrome The goal of this study was to understand how the COVID-19 pandemic has altered daily…Rigsby RigsbyJune 2, 2022
Resources for Professionals Parents as Primary Sexuality Educators for Adolescents and Adults With Down Syndrome Limited research exists on the effectiveness of in-person workshops to help parents talk about sexuality.…Rigsby RigsbyMay 3, 2022
Resources for Professionals Medical Vulnerability of Individuals with Down Syndrome to Severe COVID-19 Health conditions, immune dysfunction, and premature aging associated with trisomy 21 (Down syndrome, DS) may…Rigsby RigsbyMay 3, 2022
Resources for Professionals Prevalence of Common Disease Conditions in a Large Cohort of Individuals with Down Syndrome Given the current life expectancy and number of individuals living with Down syndrome (DS), it…Rigsby RigsbyMay 3, 2022